understanding multiple sclerosis: family and patient perception on diagnosis and facing disease
Introduction: Multiple sclerosis (MS) is a stigmatizing and degenerative disease that impacts on the organic and emotional functioning of those affected. Objectives: To evaluate the experiences and expectations of patients and caregivers in MS coping, to identify the impact profile in caregivers and patients with MS. Method: Exploratory research with a qualitative approach. The sample was comprehensive, including all subjects with MS and their main caregivers registered in the IX Regional Health Management of Paraíba / Brazil.