Quality of life of families with children affected by cystic fibrosis in a state of the Brazilian Amazon
International Journal of Development Research
Quality of life of families with children affected by cystic fibrosis in a state of the Brazilian Amazon
Received 11th September, 2021; Received in revised form 21st October, 2021; Accepted 08th November, 2021; Published online 28th December, 2021
Copyright © 2021, Ketlen de Sena Silva et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
In This study aimed to evaluate the quality of life of families of children with cystic fibrosis in a state in the Brazilian Amazon. This is a descriptive, cross-sectional study with a quantitative approach, with data collected from the application of the Whoqol-bref quality of life questionnaire. Families with children diagnosed with cystic fibrosis participated in the study. Inferential analysis was used to assess the most representative dimensions of the Whoqol-bref. It was identified that all families had an overall quality of life score classified as regular. The domain of social and environmental relationships reached lower relative frequencies of quality of life. It is concluded that cystic fibrosis contributed to the low quality of life of caregivers, imposing challenges and coping needs on families.
