Background processes to obtain ethical and data linkage approval for a data driven quality improvement program to prevent hospitalisation and improve care of people living with heart disease
International Journal of Development Research
Background processes to obtain ethical and data linkage approval for a data driven quality improvement program to prevent hospitalisation and improve care of people living with heart disease
Received 19th April, 2019; Received in revised form 26th May, 2019; Accepted 11th June, 2019; Published online 28th July, 2019
Copyright © 2019, Hafiz et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
The use of state-wide linked data is growing in research as it can provide an efficient and cost-effective way to obtain robust data from large populations. However, acquiring linked data from multiple states and territories in Australia have rarely been done due to the complexities regarding the different ethical requirements across the jurisdictions. The paper provides an overall understanding of the development and complex processes that were undertaken in order to obtain and link state-wide administrative data for the quality improvement in primary care to prevent hospitalisations and improve Effectiveness and efficiency of care for people living with heart disease (QUEL) study.
