Children and families living with diabetes mellitus type 1

Objective: To understand the perception of children and family members living with Diabetes Mellitus, Type 1. Method: Data collection by focal group, from October to December, 2016. The participants were four female children, aged between 8 and 12 years old and their parents, who were followed at the outpatient clinic of a university hospital. A structured form was used to identify the disease management, supported by the focus group. This dynamic was driven by a sensitive creative method. Data were examined and interpreted through thematic analysis. Results: According to the findings, living with diabetes is surrounded by difficulties of invasive procedures, physical and nutritional restrictions, bullying, socially and emotionally impact over family routine, which tends to be adapted to the disease demands. Conclusions: The routine of children and families experiencing the chronic disease process is noticed as a painful and difficult moment that requires daily life adaptations. The care plan should take into account this understanding, facilitating the adaptation, supported by playful group activities in order to contribute to better treatment adherence.